Children’s Epilepsy

child having epilepsy related treatment

The children's epilepsy team provides care for children, young people and their families from diagnosis through to treatment and support during transition to adult epilepsy team if needed.

Our team provides weekly epilepsy clinics in the hospital setting and we are lucky to have a One-Stop  Epilepsy-EEG clinic once per week in RDH Derby and once per week in QHB Burton allowing, where required, for some children to have an EEG on the same day as their outpatient appointment.

We liaise closely with Paediatric Neurologists based at Nottingham University Hospital for Derby Patients and Neurologist at Birmingham children’s hospital for Burton patients.

With support of the MDT, the Epilepsy Nurses provide ongoing support to children, young people and their families between clinics - we are contactable via telephone, email or at clinic appointments.

As a team, we pride ourselves on our efficient service and good support for families.

Contact us

Royal Derby Hospital

Children’s Epilepsy Team
Uttoxeter New Road
Derby
DE22 3NE

Email: uhdb.childrensepilepsyteam@nhs.net
Telephone: 01332 785 103

Contactable: Monday to Friday | 8am - 5pm

 

Queens Hospital Burton

Belvedere Road
Burton upon Trent
Staffordshire
DE13 0RB

Email: uhdb.childrensepilepsyteam@nhs.net
Telephone: 07384 914 109

Contactable: Thursdays and Fridays | 8am – 5pm

Meet the team

Dr Sumant Kumar
Based at Burton
Paediatric Epilepsy Lead
Secretary telephone: 01283 593 275


Dr Rusia Manuel
Based at Derby
Paediatrician with interest in Epilepsy
Secretary telephone: 01332 786 830


Dr Sally Moss
Based at Derby
Speciality Doctor in paediatrics with interest in Epilepsy
Secretary telephone: 01332 786 828


Rachael Wheway
Lead Children’s Epilepsy Nurse
Telephone:  01332 785 103
Email:  uhdb.childrensepilepsyteam@nhs.net


Carly Sladen
Children’s Epilepsy Nurse for Derby and Burton
Derby: 01332 785 103 (Monday to Wednesday)
Burton: 07384 914 109 (Thursday and Friday)


Email:  uhdb.childrensepilepsyteam@nhs.net


Amanda Cholerton (EEG Department)

Advanced Clinical Physiologist and EEG Lead
Telephone:  01332 787 109


We also work closely with other members of the wider multi-disciplinary team including:

Dieticians
Youth Team
KITE Team

We liaise closely with Paediatric Neurologists based at Nottingham University Hospital.

Further information and useful links

What is Epilepsy?


First Seizure Advice


Epilepsy First Aid


Safety

Download Epilepsy Nurse info pack (opens in new window) [pdf] 272KB


Reducing Risk - Sudden Unexpected Death in Epilepsy (SUDEP)


Monitors and alarms


Investigations

EEG

MRI


Treatment

Medicines information


Ketogenic  diet


Vagus Nerve Stimulation


Children’s Epilepsy Surgery Service (CESS)

For teenagers and young people

Teenagers usually transition from child to adult healthcare services from the age of 16 years. In our epilepsy service, we start to think about and plan for this transition from around the age of 14 years in order to make this a more gradual process and less daunting for young people and their family. The process of transition gives you and anyone involved in your care time to prepare for the change from children’s to adult services.

We offer a teenage clinic which you may be invited to if appropriate. The teenage clinic takes place in the evening between 4-7pm 4 times per year.  At this clinic you will be given the opportunity to speak with your doctor and epilepsy without your parents/carers present if you wish to, you will have the opportunity to meet the adult epilepsy nurse and members of the youth team will be available to talk to.
 

Useful links and documents for teenagers and young people


Other useful sources


National support

Appointments

You will be sent information about your appointment in the post, please ensure we always have your current address and contact details.

If you have a query regarding your appointment or need to change/cancel your appointment, please call:

Derby telephone: 01332 785 654

Burton telephone: 01283 566 333 (please ask to speak to patient access centre)

Training for parents / carers / schools

The epilepsy nurses and our children’s training team offer teaching for Epilepsy Awareness and administration of emergency medication.

Please see links below for more information.


Derbyshire County Settings and bespoke sessions

Visit the Chesterfield Royal website for Derbyshire County bespoke sessions (opens in new window) >


Derby City Settings and Family members

Visit the Epilepsy Action website for free online training for Derby city family members (opens in new window) >

For information regarding training for Derby City settings and family members, please contact our training team.