Event: Have your say on a new NHS service for families impacted by blood conditions like sickle cell disease
Are you or someone you know interested in having your say on a new NHS service which tells families if their newborn baby is a carrier of a blood condition, including if they are a carrier of sickle cell disease?
NHS Derby and Derbyshire Integrated Care Board wants to hear from our communities across Derbyshire to ensure their new service meets the needs of the families it serves.
The service offers advice and guidance to families and also aims to inform parents or carers of their child's carrier status for conditions like sickle cell within six weeks from birth.
Derby City
Date: Wednesday 14 May
Time: 6pm-9pm (food and drink will be provided)
Location: Derby West Indian Community Association, Carrington Street, Derby, DE1 2ND.
Sign up: https://bit.ly/4iAzuZS
Derbyshire
Date: Thursday 15 May
Time: 6pm-9pm (food and drink will be provided)
Location: The Arkwright Centre, Hardwick Drive, Chesterfield, S44 5BS
Sign up: https://bit.ly/4bAgBE6
What to expect at the event
- A brief overview of an issue that occurred relating to carrier status notifications, and why this event is taking place
- An overview of the new service, including how it will work and be monitored
- An opportunity for you to provide feedback on some parts of the service
- Information on what we will do with your feedback, and how this will influence the service
- To let us know how you would like to be kept informed going forward.
For more information about the event and why it is taking place, and what to expect, and access to FAQs about sickle cell, visit the ICB engagement website >.