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Use of Your Data in Research – GDPR update
Data used in research is covered by the new UK Data Protection Law - General Data Protection Regulation (GDPR). In relation to the ARID Study the GDPR responsibilities are as follows:
University Hospitals of Derby and Burton NHS Foundation Trust (UHDB) is the sponsor for the ARID Study based in the United Kingdom. We will be using information from you and your medical records in order to undertake this study and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly. UHDB will keep identifiable information about you for 5 years after the study has finished.
Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.
UHDB will use your name, date of birth, NHS number and contact details (including your address) to contact you about the research study, and make sure that relevant information about the study is recorded for your care, and to oversee the quality of the study. Individuals from UHDB and regulatory organisations may look at your medical and research records to check the accuracy of the research study. The only people in UHDB who will have access to information that identifies you will be people who need to contact you to arrange study visits or audit the data collection process. The people who analyse the information will not be able to identify you and will not be able to find out your name, date of birth, NHS number or contact details.
UHDB will collect information about you for this research study from your medical records. This information will include your name, NHS number/ contact details and health information (including details about hospital admissions), which is regarded as a special category of information. We will use this information to investigate factors that may help us to predict the health outcomes of patients with acute kidney injury (AKI).